Rare skin shedding disease
Former NBA star Manute Bol, the 7-foot-7 Sudanese tribesman who died at 47 on June 19, succumbed to kidney failure and a baffling, deadly skin disease called Stevens-Johnson syndrome.
Bol, a tireless humanitarian on behalf of Sudan, died in a Charlottesville, Va. hospital while suffering from the disease, which causes one's skin to shed.
Stevens-Johnson syndrome is a rare, serious disorder in a victim's skin, and mucous membranes react severely to a medication or infection. Often, according to experts, the syndrome begins with flu-like symptoms, followed by a painful red or purplish rash that spreads and blisters, eventually causing the top layer of skin to die and shed.
Bol's cousin, George Bol said doctors told the family that a "broad range of complications" led to his Manute's death.
Bol was on a charity mission to his native Sudan when an unusual series of medical conditions spiraled into a Stevens-Johnson syndrome reaction. Blisters from the syndrome were so severe that he was unable to eat or drink for 11 days.
"When he boarded the U.N. plane he left one bag behind due to space and he was separated (from) his medication, " said Tom Prichard, executive director of the Sudan Sunrise foundation, a Kansas City-area foundation for which Bol worked as a spokesman and fund raiser.
Bol's infection worsened, Prichard said, and he was sent to a hospital in Nairobi where he received medication for his kidney infection which ultimately led to the onset of Stevens-Johnson syndrome.
Stevens-Johnson syndrome is an immune system reaction that results in blisters on the skin and on the eyes, lips, mouth, and any other mucus membrane in the body.
"I think getting dehydrated was what contributed to his kidney failure, " Prichard said.
Severe blisters from Stevens-Johnson Syndrome often send patients to the intensive care unit and specialty burn centers, said Dr. Joseph Jorizzo, a member of the American Academy of Dermatology.
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