Pictures of rare diseases
Rare Diseases Day Awareness Success!
Food Protein Induced Enterocolitis Syndrome (FPIES) is a recognized rare diagnosis - globally. From Rare Diseases Day, "A rare disease is defined as rare in the USA when it affects fewer than 200, 000 Americans at any given time, and rare in Europe when it affects fewer than 1 in 2000".
"Alone we are rare, together we are strong" speaks volumes for this rare allergy. As we look ahead to Food Allergy Awareness Week - a time of allergy communities, families living with allergies, and medical providers work together to bring increased awareness to food allergies, while raising awareness to this rare type of food allergy, we want to thank all of YOU for the success of awareness raised during Rare Diseases Day!
"Join Together for Better Care" was the international theme for 2014 Rare Diseases Day.
The FPIES Community joined together and got involved in several ways:
- You raised & joined hands! Families and friends printed, colored, and created photos with Rare Diseases Day themes. Honoring the day with photo submissions on our Facebook page for increased awareness of this rare food allergic syndrome “looks” like. You can see several of them on our Kids in Action page! Others submitted directly to Rare Diseases Day
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