Autoimmune specialist // Drug Repurposing

Autoimmune specialist

j9glennselfielavenderI spent at least five hours of the last week in doctor’s offices. Sometimes this is because of “specialist bounce:” one specialist gets an idea that your symptoms exist because of another system’s (outside that specialist’s purview) errors, and sends you away to be someone else’s problem. It happens a lot. But this week, both meetings were on my autoimmune issues, with a rheumatologist and immunologist. We talked options and genetic testing and, yes, finally, a treatment path. I’ll be starting a kind of monthly shot that targets your immune system called Xolair (it’s sort of new in treating things like food allergies and autoimmune urticaria; it was developed for children’s asthma, but apparently is doing gangbusters in adults with various autoimmune problems involving IgE…) in August and see if it gets rid of at least some of the symptoms; after that, we’ll talk some of the other autoimmune generalist drugs, like Plaquenil (not a heavy hitter, but not high risk) or Cyclosporine (higher risk, but higher benefit.) I can’t help thinking, what if, what if, what if: what if this shot fixes so many of my problems that I can eat at a restaurant without fear of anaphylaxis just touching something with wheat; what if I can travel more widely; what if my life becomes, gasp, almost normal again? (Both doctors did warn me that the shot would only eliminate some of my problems; the neuro and joint problems will probably remain unchanged. So I have to come down off my optimistic cloud a bit…)

j9withwindmillmarymoorGoing and sitting in doctor’s offices for five hours a week and talking about how many things are wrong with you might generally get you down. (The rheumatologist asked: how do you stay so cheerful through all of this? And my standard answer to this is: what are my other options?) So I took some efforts to counteract this with outdoor activity, doing things I love. This week, I visited some local East side lovely areas: The Woodinville Lavender Farm, Marymoor Park:

We saw our first yellow swallowtail of the season, and bought some sachets for the laundry. It’s hard to think sad thoughts in the middle of warm sunshine and a field of lavender. It explains why Provence real estate costs so much! I walked around the lake at the Chateau Ste Michelle winery and counted the ducklings and watched the swallows. I watched for new baby rabbits at my local park.

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Does it look anything like this?

by micaria

If so, you probably have a hereditary autoimmune disease known as alopecia areata.
A friend of mine has it even though no one in his immediate family had it through several generations. It is somewhat treatable.
It has NOTHING to do with diet, if that's what it is, and you could verify it with a specialist.


by BDsufferer

Has anyone ever heard of this disease? I was diagnosed in May 2006. I would like to know if you do know someone, is there anyone out there who knows of a specialist who treats this? It is very rare in N.A., and is a chronic inflammatory condition of the autoimmune system which affects all vascular and soft tissue areas in all body systems.
Thanks for your help.

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Oxford University Press Lupus (The Facts)
Book (Oxford University Press)